"When your child is in agony at 2 AM, you are glad someone answers": father of Devano (18) supports call for better palliative care for children

The Federal Knowledge Center for Healthcare (KCE) warns of a structural shortage of resources and personnel in pediatric palliative care in Belgium. The existing pediatric liaison teams are limited by outdated regulations, hindering their ability to support children effectively. Angelo, the father of 18-year-old Devano, who passed away from a brain tumor, highlights the crucial support from the KOESTER team at UZ Gent during his son's final months. The KCE emphasizes the need for sustainable funding and better integration of pediatric and adult care, especially as children transition to adult healthcare at age 18. This transition can be challenging, as adult care often lacks the specialized support children receive.